A good day!

“Colpo di fulmine. The thunderbolt, as Italians call it. When love strikes someone like lightning, so powerful and intense it can’t be denied. It’s beautiful and messy,
cracking a chest open and spilling their soul out for the world to see. It turns a person inside out, and there’s no going back from it. Once the thunderbolt hits, your life is
irrevocably changed.” 
― J.M. Darhower, Sempre


Just what we needed - a good day! I know this experience will have good days and bad but when we have a good day, it feels like a REALLY good one..... Finn is now off of the oscillating ventilator. This is such a relief because it made him "wiggle" constantly to give him gentle ventilation. He has graduated to a regular ventilator and it is just so much more quiet and he is able to be re-positioned and "contained" more in a fetal like position.

Kyle and I have been fortunate enough to listen in on rounds daily. This is such a good thing for us to participate in and we really feel as if we are part of Finn's care. The NICU team at Meriter hospital is beyond amazing and the nurses are so empathetic, comforting, detailed, and smart. I know when this experience is over I will be a better nurse practitioner and a better provider in general because I now know what families are going through. At Meriter, we haven't met a single person who was not friendly and helpful - and the family centered care here is so good.

That's my compliment for the day ....now back to Finn :)
They were able to turn off his epinephrine today. Hooray little Finn! Now the next step is to wean down the Dopamine and then he will be completely supporting his own blood pressure. Such a good day.  I keep dreaming of how amazing the day will be when we get to hold Finn. I think it will be one of the most special days of my life. For now, I will hold his hand and that will be my snuggle time.